As you might remember from earlier posts my daughter has hydrocephalus. In September she underwent a cranio-plasty. When she was 9 she had 2 craniotomies. This is when they remove a section of your skull (about the size of an adults palm) Well one hadn't re attached to the skull. They went in during the cranio-plasty and riveted the skull flap back on. We were only in hospital for about 4 days and sent home. Her poor head by this point looks like a road map.
We had her follow up last week and seemed well. no CT or visits to neurosurgery for about 2 years unless there is an issue. Well after 15 years and 16 brain surgeries i am pretty sure her head just knows that if things are well and she is given the clean bill of health it is time to shake things up again. For 3 days now she has had major headaches and it would seem to me (although i am no neurosurgeon) that the flap they attached is sunk in a bit again. I am not sure how this is possible as it is riveted in place with titanium screws and plates. but i am praying earnestly that it is nothing more than the virus that is going around which does cause headaches. I am not sure, even after all this time how to differentiate between the normal ailments and the life threatening shunt malfunction because the symptoms are the same. I can only pray that God will give us a year or two of normality. He will not give you more than you can handle and i am pretty sure we have both handled more than enough. It is incredibly hard on my son as well as we are away from home and he is made to stay with family... Not really a big deal but there is the worry of your sibling lingering over head it can be difficult. SO lessons in life...
As i was reading In my email study of 2 Corinthians 6 3-10. 3
As i was reading In my email study of 2 Corinthians 6 3-10. 3
3We put no stumbling block in anyone's path, so that our ministry will not be
discredited. 4Rather, as servants of God we commend ourselves in every way: in
great endurance; in troubles, hardships and distresses; 5in beatings,
imprisonments and riots; in hard work, sleepless nights and hunger; 6in purity,
understanding, patience and kindness; in the Holy Spirit and in sincere love;
7in truthful speech and in the power of God; with weapons of righteousness in
the right hand and in the left; 8through glory and dishonor, bad report and good
report; genuine, yet regarded as impostors; 9known, yet regarded as unknown;
dying, and yet we live on; beaten, and yet not killed; 10sorrowful, yet always
rejoicing; poor, yet making many rich; having nothing, and yet possessing
everything.
discredited. 4Rather, as servants of God we commend ourselves in every way: in
great endurance; in troubles, hardships and distresses; 5in beatings,
imprisonments and riots; in hard work, sleepless nights and hunger; 6in purity,
understanding, patience and kindness; in the Holy Spirit and in sincere love;
7in truthful speech and in the power of God; with weapons of righteousness in
the right hand and in the left; 8through glory and dishonor, bad report and good
report; genuine, yet regarded as impostors; 9known, yet regarded as unknown;
dying, and yet we live on; beaten, and yet not killed; 10sorrowful, yet always
rejoicing; poor, yet making many rich; having nothing, and yet possessing
everything.
So while i have my fair share of troubles it is a huge comfort to know that even though these men faced certain death, torture and imprisonment they made it, They are with our Lord and Saviour as i type and I am ever grateful to God for the Word. Stories like theirs make mine seem insignificant. Everything i s possible through Him. I will survive, Life will go on, I will continue to thank God for everyday we are able to be here and are able to praise Him openly. God is Good no matter the circumstance.
Praising His name,
2 comments:
thank you for this post! i will survive---so true. life will go on---yes, thankfully so.
i too have a disabled child and sometimes it seems so overwhelming, but God is good regardless of the circumstances like you say.
your post was a good reminder for me to put my focus on the Lord and not what my son can't do or what trial we are going thru at the moment.
blessings on you and your family!
Thanks Gail, My daughter and i actually just got home yesterday from yet another operation. I had to go back and read my own post to encourage myself...hahaha! unfotunetly when things get rough it is easy to focus on the negative but God has promised that we will never have to go it alone. Praise the Lord, He is with us always! Thanks again Gail, I hope all is well with you and yours.
Blessings...Leanne
Post a Comment